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The PPB Registry has announced the dates of the next PPB Family Weekend to occur August 12-14, 2012 in the Twin Cities, MN area. We will post information as we learn more.
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If you have any logistical questions about the weekend (including requests for travel financial aid), then please contact Ms. Dale Cutright at or 240-314-7528.
Questions about the conference program should be directed to Ms. Gretchen Williams, Research Coordinator at
Additional conference info found at the sites of the Genetic Study and the Registry.
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Slide presentations available for download are links below. Note that, in general, slides were designed to serve as a tool to facilitate discussion, not as an isolated teaching tool. As we receive more of the slides, we will post them ASAP. To access the slides, you must use the password distributed at the Family Weekend conference. If you forgot the password or did not attend the conference, then write to . Please be patient about a reply. Download draft program in PDF format.
- Friday, July 30
| 2:00 to 8:30 p.m. |
Registration, Welcome Reception, and Open Play |
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| 5:00 to 7:30 p.m. |
Italian Buffet Dinner |
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- Saturday, July 31
| 7:30 to 9:00 a.m. |
Breakfast Buffet |
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| 9:00 to 9:10 a.m. |
Welcome to Washington, DC |
D. Ashley Hill |
| 9:05 to 9:45 a.m. |
PPB Registry Updates: Overview of PPB |
Yoav Messinger |
| 9:45 to 10:30 a.m. |
The DICER1 Gene in PPB |
D. Ashley Hill, Jiandong Yang, Weiying Yu, & Kerry Skiver |
| 10:30 to 11:15 a.m. |
Translating Discovery to Benefit Families (So what does it all mean?) |
Jennifer Ivanovich |
| 11:15 a.m to noon |
Question and Answer Session |
Yoav Messinger, Louis Dehner, D. Ashley Hill, & Jennifer Ivanovich |
| 12:00 to 1:30 p.m. |
Lunch Buffet |
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| Afternoon |
Smithsonian Museums |
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| Evening |
Washington Nationals Baseball Game |
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Dinner |
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- Sunday, August 1
- Speaker's Institutions & Degrees
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Children's National Medical Center |
D. Ashley Hill, M.D.
Leslie Doros, M.D.
Jiandong Yang, Ph.D.
Weiying Yu, M.D., Ph.D.
Kerry Skiver, B.S.
Holly Deluca, M.S.N., P.N.P.-B.C.
Cleo Stevenson, R.N. |
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Children's Hospitals and Clinics of MN |
Yoav Messinger, M.D.
Gretchen Williams, B.S., C.C.R.P. |
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Washington University Medical Center |
Louis Dehner, M.D.
Paul Goodfellow, Ph.D.
Jennifer Ivanovich, M.S., M.B.A. |
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Cincinnati Children's Hospital |
Kathryn Wikenheiser-Brokamp, M.D., Ph.D. |
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National Cancer Institute |
Christian Kratz, M.D.
Ann Carr, M.S., C.G.C. |
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- 2008 Bloomington, Minnesota. Some conference DVD recordings are still available. To request your copy, please contact
- 2006 St. Louis, Missouri.
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