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Please help Trisha Anderson raise funds for PPB research!

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PPBfamily.org Home Page
Introduction
Pleuropulmonary blastoma (PPB) is a rare childhood cancer affecting the lung and surrounding area within the chest cavity. This terrible disease usually strikes within the first 5 years of life. More PPB information can be found in the Resources page. We encourage families to enroll in the PPB Registry so that our collective involvement can work toward a cure. Contact the Registry at 612-813-7115 or info@ppbregistry.org.

This website is for families battling PPB. We provide links to official medical sources as well as journals (blogs) from families who are describing their children's stories. In particular, we help publicize the PPB Family Meeting held biennially.

Please help Trisha Anderson raise funds for PPB research!
PPB research and the 2015 Family Meeting need funds. Early patient, Trisha Anderson, has generously taken the lead in a fundraising campaign. Let's all support Trisha fight childhood cancer!

PPB Family Meeting Success
Around 20 families attended the 2012 PPB Family Education and Support Meeting. We learned about the latest in PPB research and had a rare opportunity to find comfort in each other's company. Attendees, please take our survey to have access to a higher-resolution version of the photo below. More pictures are available in the password-protected photo album.

Posted Aug 14, 2012.

PPB Families Thank You!
PPB families and researchers thank all donors who helped fund the 2012 PPB Family Education and Support Meeting. Click on the title card below to download a high-resolution version to read our personal thanks to you!

Posted Aug 14, 2012.

Direct Donations
Please consider making a donation to support PPB medical research at both the Registry and the Genetic Study. Since PPB is such a rare disease, it is difficult to secure grant funding.

Disclaimer
The contents of this website, should not be considered medical advice. Please review all information with your child's oncologist and medical team.

   
© PPBfamily.org last modified 19-Aug-2014