PPBfamily.org Home Page

Introduction Pleuropulmonary blastoma (PPB) is a rare childhood cancer affecting the lung and surrounding area within the chest cavity. This terrible disease usually strikes within the first 5 years of life. More PPB information can be found in the Resources page. We encourage families to enroll in the PPB Registry so that our collective involvement can work toward a cure. This website is for families battling PPB. We provide links to official medical sources as well as journals (blogs) from families who are describing their children's stories. In particular, we help publicize the PPB Family Meeting held biennially.

New PPB Registry Newsletter and PPB Family Meeting Dates
	The PPB Registry has published the first issue of a newsletter, PPB Connection, for families in their mailing list. To receive future issues, please enroll in the PPB Registry. Also, they have announced the dates of the next PPB Family Meeting to occur August 12-14, 2012 in the Twin Cities, MN area. We'll post information as we learn more.

Participate in a Survey to Create a PPB Family Email List

PPBFamily.org would like to start a private email list for family members. Unfortunately, the PPB Registry can not share their list due to legal restrictions. So we need to survey families on our own to collect email and surface mailing addresses. We also ask some questions to improve the resources for this website and the PPB community in general. Your contact information will be kept private. If you require a translation of the survey, please request the language by writing to us at . Please be patient about a reply.

Direct Donations
	Please consider making a donation to support PPB medical research at both the Registry and the Genetic Study. Since PPB is such a rare disease, it is difficult to secure grant funding.

Disclaimer
	The contents of this website, should not be considered medical advice. Please review all information with your child's oncologist and medical team.