Next PPB Family Weekend conference will be August 7-9, 2015!
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PPBfamily.org Home Page
Introduction
Pleuropulmonary blastoma (PPB) is a rare childhood cancer affecting the lung and surrounding area within the chest cavity. This terrible disease usually strikes within the first 5 years of life. More PPB information can be found in the Resources page. We encourage families to enroll in the PPB Registry so that our collective involvement can work toward a cure. Contact the Registry at 612-813-7115 or info@ppbregistry.org.

This website is for families battling PPB. We provide links to official medical sources as well as journals (blogs) from families who are describing their children's stories. In particular, we help publicize the PPB Family Meeting held biennially.

2015 PPB Family Meeting Dates
The 2015 PPB and OTST Family Meeting will occur August 6-8 at the Radisson Blu Hotel in Bloomington, MN. For more information visit the meeting website.

Direct Donations
Please consider making a donation to support PPB medical research at both the Registry and the Genetic Study. Since PPB is such a rare disease, it is difficult to secure grant funding.

Disclaimer
The contents of this website, should not be considered medical advice. Please review all information with your child's oncologist and medical team.

   
© PPBfamily.org last modified 30-May-2015